About Hemophilia Advocacy Society
Hemophilia Advocacy Society is Pioneer Society of Punjab which is run by the Hemophilics For the Hemophilics. In our State the conditions of Hemophilics were very worst and there was no body ready to listenn the problems of Hemophilics. Hemophilics was spending their lives on the mercy of God.
Hemophilics are commonally using Term Blood Brother when they call to an other Hemophilic
In May 2014 the Blood Brothers of entire Punjab came to under one roof due to common issues and Hemophilia Advocacy Society originated. The Blood Brother regsitered a society i.e. Hemophilia Advocacy Society Punjab ( in Short – HAS ) under Societies Registration Act, 1860.
From May 2014 to Nov. 2014 Hemophilia Advocacy Society oragnised numbers of awareness camps at Village levels, Town Levels, City Levels and spreaded the awareness about the bleeding disorder Hemophilia and due to same we found almost 220 patients from the entire Punjab without any Government help.
Since 2014 Hemophilia Advocacy Society conducted numbers of Patient Education Programe throughout the Punjab and also conducted many CMEs in all Government Medical Colleges & Hospitals of Punjab as well as in Dsitrict Hospitals of Punjab to sensitize the medical fraternity.
In Nov. 2014 Hemophilia Advocacy Society filed a PIL before the Hon’ble High Court of Punjab & Haryana Chandigarh and after the long battle on dated 26th , March 2018 decision pronounced in the favour of Hemophilia Community and Government of Punjab notified the policy for the treatment of Hemophilia patients in the State of Punjab.
Hemophilia Advocacy Society (Regd.) Punjab is doing efforts to achieve the best in regard the Hemophilia Comprehensive care.
In May 2014 the Blood Brothers of entire Punjab came to under one roof due to common issues and Hemophilia Advocacy Society originated. The Blood Brother regsitered a society i.e. Hemophilia Advocacy Society Punjab ( in Short – HAS ) under Societies Registration Act, 1860.
Objectives of Hemophilia Advocacy Society
The aims & objects of HAS shall be as follows:
- To establish, maintain, assist, encourage, promote and render medical care for Hemophilia and other such disorders.
- To propagate and run programmes and projects including education and rehabilitation of the affected people from such disorders.
- To provide relief measures in regard to Hemophilia .
- To impart, propagate/advocate for the need, knowledge, education in treatment and management of Hemophilia and other disorders & organizing. Seminars and workshops on such diseases. Also establish run, encourage & help the institutions, centers imparting/ rendering the knowledge, education, training for such disorders.
- To establish and bring about the cooperation and coordination with Government agencies, authorities and other private or public bodies in Punjab, with other organizations in furtherance and advancement of the welfare of sufferers of such disorders.
- To cause, to encourage the enactment of legislations helping the sufferers of Hemophilia and related disorders in the State level.